Given that I had what my doctor (the top thyroid surgeon in the region who does hundreds of surgeries a year) said was the biggest surgery he had done all year, my recovery was much worse than what most peoples should be. HI All, I really needed people telling me what was going on. A few days later she called again and said that my Vitamin D is also very low and I would have to have another appointment with my PCM to get high dose Vitamin D pills. I had compression stockings on that kept me up, noise like crazy in the ICU, nurses and doctors coming in, 2 IV (one in each arm), and a blood pressure monitor going off every hour. Your neck is likely to be swollen and may feel hard and numb right after the surgery. My doctor recommends endoscopy to check how the vocal cords and other nerves have healed inside but I am.just not ready to go back to the hospital yet. I know that there is nothing I could have done to control the anxiety, I guess I'm just poorly wired that way or it is a defense mechanism. I was diagnosed with papillary thyroid cancer over the summer and received a total thyroidectomy and bilateral neck dissection two months ago. I know its a bit silly but I am kind of nervous of attending the cancer survivor group. I am defiantly feeling much more mentally stable after I was put on Synthroid. Mine was 10-11 hours and I came out with a scar in the shape of a "U" that goes from ear to ear. On May 17th I went to Bangor clinic for a update with my primary care provider and we discussed things like my recovery plan and basically made sure that they had a full picture of my current health. I have been on Levothyroxine 125 to 150 for 2.5 weeks and am starting to feel better from Hypothyroid symptoms. I started exercising 6-8 weeks after the surgery and realised I feel breathless much easily and if I exert too much, there's a slight pain on the upper left side of my neck. Follow-up of the patients with the scales applied in the experimental group were also performed to the control group at the same intervals. An anyone please tell me about possible salivary gland infection, after thyroidectomy and RAI in December 2017. My partner, expecting me to be in surgery by 4pm, had left around 3:30pm to go to a nearby hotel and take a nap. Anyway - I am still alone in hotel away from Family after RAI. I've always had the pain when coughing hard. I'm dizzy like I'm drunk and nauseated. Following Endocrine appt, doc said TSH was too low and decreased replacement (within first 3 months), fought it since it meant dropping below my preablation dose. So I was told at that time . Will do an RAI in 4 weeks. As an example, one surgeon said he wouldn't do the surgery without intraoperative nerve monitoring of the recurrent larynegal nerve and the other said he thinks it's a waste of time to use the nerve monitor. It kind of made me mad and I felt a bit taken advantage of that during a time of such crisis they were asking for payment up front. After two weeks I just showered and shampooed normally. Results: Ask questions on here. May 5th 2010 was the big day they did a multitude of CT scans (multiple scans over a 3 hour period) followed by a long conversation with the doctors about what they were going to give me. Neck swelling after thyroidectomy: not always a haematoma Although, I highly recommend going somewhere where you can be alone (not a hotel). I was sweating pretty badly and was given anti-nausea medication (it really wasn't that bad to be honest). Before I could not work out as I was to Hypo and the headaches alone were so bad . but now after 2.5 weeks on the meds I have some energy back. On May 14th I went back to Madigan for follow-up CT scans. At home I had only pain pills (as needed) and Motrin (every eight hours) no more IV pain medication. Post-Operative Instructions for Parathyroid Surgery. I have always preferred water at room temperature. Recommendations to newbies: I was told that frequently they run early. I was diagnosed with a large thyroid mass Dec 2009 Bremerton Naval Hospital in Jan 2010 they determined the mass was follicular cells but could not determine by fine needle aspiration if it was cancerous or not but since it was making it hard to breath they decided to operate to remove my right side thyroid this happened on Feb 22 2010. Dr H. thinks everything is looking good and she retires on the 19th of Aug. I had a Total Thyroidectomy around 9 weeks ago for FVPTC, then they ran me hypothyroid for 6 weeks and pushed TSH over 100, then did my RAI 3 weeks ago. Initial risk classification was determined as T3N1bM0, American Joint Committee on Cancer (AJCC) 8th edition stage 1, and intermediate American Thyroid Association risk. Because I had such an intense spread, my surgical experience was a bit different than others. You are now HYPOTHYROID. It took 26 minutes. I still feel some prickling pain inside my neck and when i tried to lift my neck slightly from flat on my back the pain is still quite significant, I don't know if that means i'm still healing or whether i'll keep having the same issue. Also, people with darker skin tones may seem to have more noticeable scars due to the contrasting color of pigmentation in scar tissue and skin color. Thyroidectomy and bilateral neck dissection - Thyroid cancer - Inspire I am still having the constant dry mouth and the metallic taste is still annoying. Chyle leak is a rare complication of thyroid surgery. 1. I have discovered that this is not a good cancer to have and it has not been easy. They brought him back to see me in pre-op again. Then a bunch of insurance crap happened (my entire surgery may not be covered because the ENT was not on my list of docs I could see - this is bs but a completely different story) and I had to start driving an hour away to see an endocrinologist. She was right, the yogurt was a snap to get down while the apple juice was really painful. Since then I have had minor vertigo and a small section of my tongue tastes like metal when eating (supposedly this is do to the taste sensor in the ear?). I said, it hurt like hell. On Thursday night my mom made a very basic Thanksgiving dinner and I was able to eat all of it with no problems whatsoever. The usefulness of rehabilitation (i.e., a stretching exercise) for reducing these symptoms after surgery has never been studie Lump in my neck after Total Thyroidectomy - Thyroid cancer - Inspire I really hope you get the feeling that post-op will take good care of you. My wife went home to take care of our kids and my mom came in for a couple hours. Now I am two months post thyroidectomy (and 1.5 weeks pre-RAI) and I am experiencing throbbing, stabbing (on and off for the past few hours) ear pain in my right ear. If you are taken care of only half as well as was I, then you will be in excellent hands at the hospital. The reasons for that are in this post https://www.inspire.com/groups/thyca-thyroid-cancer-survivors-association/discussion/its-100-for-sure-cancer-pathology-report-back/ I was under a great deal of stress and thought that was why I gained so much weight so quickly. My salvitory glands swelled up a bit and were sore the first day, my sense of taste just minorly changed and was a little fatigued/headachy for a couple days. On June 10 I had my follow-up with Dr H. for the thyroid removal and got another unofficial look at the CT scan. It is found in the front lower part of your neck. The day of surgery I was scheduled for 2pm arrival and a 4pm surgery as an outpatient. This is my biggest problem at the moment, not being able to work out is making me sit here and lose my mind. Post-op is a bit of a blur. One more (indelicate) thing, take the stool softener they give you. I quickly ordered mac and cheese and mashed potatoes. Nov 2009 through Oct 2010. So frustrated and all alone - 2nd guessing what Dr's have done and why. After surgery, you can expect some pain as your body heals. Ylinen J, Takala EP, Nyknen M, Hkkinen A, Mlki E, Pohjolainen T, Karppi SL, Kautiainen H, Airaksinen O. JAMA. We present a case of a patient who returned with a neck swelling 6 days following thyroidectomy and central neck compartment lymphadenectomy for suspected thyroid carcinoma. The patient reported no radiation exposure to head or neck during childhood, but she had a positive family history of thyroid cancer in two paternal cousins, nontoxic multinodular goiter in her father and sister, hypothyroidism in her mother and hyperthyroidism in her maternal grandmother. Complications associated are still common and 80% of patients complain of posterior neck pain. These symptoms may persist for long . Went to Bremerton naval emergency and they put me on oxycoton and told me to go to Madigan on Monday I was in an intense state of fear at this point after calming down somewhat in the original hospital room. I chose the doctor that did 350 to 500 thyroidectomies per year (he was also the doctor who didn't use the larynegal nerve monitor). However in addition to no LID, no one ever discussed things like AG, AGant, what TSH is, etc . Held at hospital 3 days post RAI, then stuck here since I have a 2.5 year old. Follicular carcinoma minimally invasive (7.1 cm) Nerve pain or neuropathic pain comes with skin sensitivity, tingling, numbness, and stabbing pain. Some nurses came and took my vitals and repeatedly asked me a lot of questions, including what type of surgery I was having and my date of birth. In the meantime non-invasive treatments based on ultra sound, radio-frequency may help. Hi! If I can be as much of an emotional and psychological mess as I was and get through it I promise you will be just fine. The combination with of nortriptyline 10 mg per day and . Surgery lasted 6.5 hours, NO LYMPH NODES REMOVED, but complete TT. So, seriously, take the stool softener. The diet is annoying, but even with being ridiculously strict (pretty much only ate fruits, veggies and egg whites), its only for a short time and at least is a good diet. It's not completely numb but the inside feels like muscle / skin is falling asleep or 'thick' (not sure if i describe them properly). Within 2 hours I got up to use the restroom and asked if I could take a couple laps around the ICU, which the nurse allowed me to do by attaching a portable monitor to a wheelchair that I pushed. Difficulty swallowing. The biopsy of the left thyroid nodule was rated as Bethesda category IV (follicular neoplasm), and the lymph node was consistent with metastatic papillary thyroid cancer. The first time I had RAI I had absolutely no symptoms. Through the night I got up to use the bathroom. My surgeon has me taking 500mg calcium with vit.D along with Tums for my parathyroids (they were left intact during the surgery, but my doctor put me on the calcium as a precaution). He also said he was worried about my balance issue. She was confident that these findings appeared after her thyroid surgery. No idea why this report was 2cm and ultrasound showed 3cm. I felt bad the first two days but that was it. On March 8th I had a full eye check and they gave me a new prescription for glasses along with noting that I should have more frequent eye checks (6 months a year) do to the fact that thyroid issues can cause vision changes. Sharp stabbing pain in the front of the neck? - Thyroid cancer So the procedure was to do partial thyroidectomy, and biopsy during surgery, then removed rest if cancerous. We had to travel to Cleveland Clinic for the surgery on Oct. 28th due to the surgeons here would not do it. I know some of my mom's friends who have had it done that were out running a few days later. It has been 3 weeks today since his surgery and he is experiencing these symptoms. Waiting on that was probably the worst part, as I felt like I had been released from a jail sentence (I've never been in jail but I assume it's like this) but not being unlocked from the cage. The .gov means its official. Numbness or tingling of fingers, toes, or around the mouth. You may need a thyroidectomy if you have thyroid cancer or a growth on your . NSAIDs (non-steroidal anti-inflammatory drugs) such as ibuprofen (Motrin, Advil), naproxen (Naprosyn, Aleve), or acetaminophen (Tylenol) are most helpful for any pain after thyroid or parathyroid surgery. Cleanse the incision area the day after surgery. Vascular dilation on the other side of the face may or may not be present (Figure 1). But, after some bit of haggling I agreed to a small payment up front (really small - like less than a trip to Costco small) and to pay the balance after my insurance got done with the bill. The last 2 days he has been dizzy, lightheaded. PDF Annals of Pain Medicine Case Report - remedypublications.com Accessibility My time in the ICU was unpleasant, but only because I wasn't able to get any sleep the night before my surgery and the night I was there. Once they do this will it be possible to do strenuous exercise (Boxing / Sprinting etc ) or could that affect my heart? Your thyroid gland is shaped like a butterfly. If skin is not sufficiently retracted after 6 months, anterior neck lift or lower face/neck lift should be a consideration. Chronic postoperative pain exists in varying degrees for every type of surgery. Now, the scar. I was told to get naked and to put on a gown called a bair paws gown. They required me to start out on a liquid diet, which I tore through like crazy (the cherry "ice" was really good). I contacted the surgeon-he blamed the post op Percocet. Typically thyroidectomies take about 3hours and you come out with a cute little 3in scar. I did. I can't imagine home hard that would be in the neck. This was a process of 1 10 min neck scan followed by a 40 min full body scan and then a follow-up 10 min scan for an area that wasnt clear on the first scan (guess I moved too much) but I was informed by the tech unofficially that the scans looked clean. 2) Got results July 26th and they showed nearly 3cm mass on ultrasound in right lobe of thyroid, all blood work was normal. Please help me understand! Early in August my kneed started acting up (been giving me pain for 7 years but I was told they couldnt do anything about it. I would characterize what I went through as "mild discomfort." Your health care provider may advise using sunscreen to help keep the scar from being noticeable. It's hard to raise my head and I couldn't look up at the ceiling. The tonsillectomy was pure hell! I did the thyrogen shots instead of going off of my synthroid, so if you have that option, would 100% do it. I was told I would be having surgery in mid-October and it was not able to be scheduled until November 23. I don't know why it seems that everyone naturally goes hypo, that seems like an awful process instead of getting two symptomless thyrogen shots. If I hadn't known about 7 other women who had all gone through total thyroidectomies and RAI with absolutely no lingering symptoms, I would have been freaking out prior to my surgery. I have felt 100% on my medicine (and I've been all over the TSH scale). A 27-year-old woman with no significant medical history presented to our institution for management of her thyroid cancer. I have heard some things from Dr's here I question a little bit (As I told some people before no low iodine diet was ever recommended etc although I did a 5 day extreme low one so . ). Ask for the brand name thyroid drug. I told them I had good insurance and that I'd take care of the bill after surgery (which is the arrangement I had with every other service provider for my thyroid cancer). This is normal and will gradually get better as the wound heals. Soooo I got in to see a new guy in my Drs practice and he referred me to an ENT the next week. Ear surgery went well on the 19th I started getting my hiccups and those lasted 7 days I did manage to get an ear infection on Friday Aug 20 and by Sunday evening I was at max allowed pain meds and it wasnt helping. FOIA In general, thyroid surgery is well tolerated and the vast majority of patients will have a smooth recovery. I got into bed and took a 3 hour nap, which was pretty glorious. Monday the 22nd at Madigan they gave me valium to go with the oxycoton didnt really help the pain I just didnt care about ANYTHING Tuesday night I started the antibiotics (1 day early) and by Friday the 27th the pain was back to where I only needed Tylenol. The site is secure. They said let the steri-strip fall off on its own and it fell off today. There's just so many nerves and glands and other structures in your neck that you don't want to mess with, don't make the mistake of blindly putting your future in some random doctor's hands. Keywords: and transmitted securely. The Nutritionist who gives this seminar said she would check through my medical record to make sure my levels were normal and if she couldnt find all the blood tests she would order them so I could get my nutrition balanced. The surgery went well and the next day I was released from the hospital to recover. Crepey skin on neck after thyroidectomy: Will it go away on it's own? It is important for endocrinologists and thyroid surgeons to be aware of this uncommon complication to reduce the risk for this facial disfigurement during surgery. I knew something was wrong last June 2014 talked to my doc about a strange pain in my neck. Furthermore, last night, I was awoken at 3 am by pain in my neck. Second time with the larger dose was a little worse, but nothing terrible. So, I was really getting insistent that he go home. Mid summer I saw and felt a lump on the right side of my neck. After the shot of midazolam, I was willing to put the gown back on along with the anti-clotting boots. Total Thyroidectomy - What You Need to Know - Drugs.com I am usually not one to write on here because It is my husband who had thyroid cancer in 2013 & most recently a neck dissection on his right side they removed 31 lymph nodes & thankfully only 1 was cancer. Wednesday and Thursday I continued to improve. On the 18th of June I went back to Dr Ch., Endocrinology at Madigan for follow-up on my CT scans and to check the balance on my thyroid meds. All assured me that I would be in good hands and they would see me in a few hours. Ylinen J, Kautiainen H, Wirn K, Hkkinen A. J Rehabil Med. 2019 Aug 8;49(4):1185-1191. doi: 10.3906/sag-1812-55. From there I went my 2nd physical therapy appointment, I am getting more movement in my knee and overall the pain is less, He also suggested some things I could try to help my balance while I was waiting for vestibular training to be fully approved by Tricare and setup. This is the post I put online two days after surgery https://www.inspire.com/groups/thyca-thyroid-cancer-survivors-association/discussion/home-from-tt/ My surgeon kept telling me it's normal after the surgery, but won't give me detail explanation. Abstract Introduction: Thyroid surgery is a popular and effective treatment for many thyroid diseases, including thyroid cancer. You should wait at least 6 months after surgery to see how much would neck skin retract. 1) When can I start running and exercising? I went to both appointments with a list of written questions. On October 4th I had my first appointment with Su., the nutritionist, and she told me that looking at what lab results were in the system that my calcium, magnesium and potassium are all low. I was there a short time where I met briefly with a surgical nurse, my anesthesiologist, and my surgeon. I met with two different surgeons. Our plan had been for him to get a hotel room to use as a day room while I was in surgery and to use it if they released me way late in the evening. I had to cave in and take one of my remaining pain meds. "Neck pain and discomfort scale" and "Patient and Observer Scar Rating Scale" were applied again in both phone calls. Stretching exercises vs manual therapy in treatment of chronic neck pain: a randomized, controlled cross-over trial. I'm not sure if this is related with the numb feeling I'm having. After a thyroid lobectomy, you'll need to have your thyroid hormone levels checked and will be prescribed a thyroid hormone replacement, if needed. I took all my own sheets, towels and wore gloves the first two days. An official website of the United States government. But, on leaving the hospital I was told to come to the doctor's office in a week for my replacement prescription. He said I was drenched on my back, and at that point I'd had all I could take of that plastic and paper gown and it came off me and onto the table. Thyroid Surgery (Thyroidectomy): Prep and Recovery - Verywell Health I still have poor vocal range and intensity. i am at my wit's end with all of this pain after my thyroidectomy last Post thyroidectomy pain in neck? : r/thyroidcancer - Reddit Even one of the nurses asked if I'd had the midazolam yet and the anesthesiologist said, yes. Emerging from my first anesthesia experience was quite honestly like waking up from a bad alcohol blackout where you have no idea what was going on for the last few minutes, hours, days?, weeks? Application of the healthcare failure mode and effects analysis system to reduce the incidence of posture syndrome of thyroid surgery. National Library of Medicine That said, I was in very little discomfort and did not even feel that much of a sore throat. I'm normally an extremely social individual that loves living life to the fullest and experiencing the best that it has to offer.

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